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Boy, 13, With Rare Bone Disease Taken On A Ride In Kombi Van
19-01-2023, 14:03 | Автор: GregAitken | Категория: Информация
A young car enthusiast stricken with a rare bone disorder has been taken on the ride of his life as he prepares to undergo the next phase of a revolutionary drug trial.
Sydney teenager Zach Armstrong, 13, couldn't believe his eyes when a 1960s Kombi recently turned up in his driveway to take him on a drive ahead of one of his frequent flights to Brisbane for treatment and tests. 
CareFlight went the extra mile to organise the special surprise with Klassic Kombiz to make Zach's latest trip up north less daunting.





Fibrodysplasia ossificans progressiva patient Zach, 13, was taken on the ride of his life in a 1960s Kombi (pictured) before another CareFlight journey

Zach love of cars began when he saw the Herbie movies when he was two, the same age he was diagnosed.
'His face lit up when he saw the 1960s Kombi Servisi in our driveway on our most recent trip in January,' mum Laurin Dean said.
'He's addicted to Volkswagens, he knows them all.'
Zach has previously been surprised with stretch hummers, a fire truck, military trucks and even a police escort to take his mind off the never ending stream of tests and appointments at Brisbane's Lady Cilento Children's Hospital.





Zach, 13, is one of 3,500 people worldwide with fibrodysplasia ossificans progressiva

While Zach's frequent 1000 kilometre trips up to Brisbane are far from over, his mother remains hopeful for the future.
'Last year we got approval for a drug trial here in Australia and we're now in phase three, which is a real positive sign,' Ms Armstrong said.
'He'll be on the drug trial for two years, which requires us to travel twice a year to Brisbane.'




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Sydney teenager Zach Armstrong (pictured) is one of CareFlight's most frequent flyers

 




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